| StoneyBrooke Foundation Helping improve the lives of people with Prader-Willi Syndrome since 2003 |
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| . StoneyBrooke's Mission Our mission is to provide high quality stablilized residential services for individuals with Prader-Willi Syndrome. Our services ensure one on one client staffing, individual support plans, behavior support plans, social and community integration programs, accountable interdisciplinary team and respite care for families and care givers. Inherent to our mission, we serve as an avenue to provide information and access to all counties and the State of Oregon, provide technical assistance to families and care providers (residential foster and group homes) and serve as the Prader-Willi Syndrome information center in the Pacific Northwest. |
Prader-Willi Syndrome Prader-Willi Syndrome is a genetic disorder identified by Swiss doctors A. Prader, H. Willi and A. Labhart in 1956. PWS is a lifelong and life-threatening condition that affects insatiable appetite, physical growth, metabolism, cognitive function and raging behaviors. PWS is the most commonly known genetic cause of life-threatening obesity in children and adults. The most serious challenge facing someone with PWS is that they never know a moment without hunger. Because of this insatiable appetite and the lack of ability to understand it, for many every waking moment is consumed with the pursuit of food. Unfortunately most people with PWS lack the reasoning ability to understand why they have this raging hunger. This manifests itself in severe behavioral problems which often become violent. It is estimated that PWS strikes one in 10,000-12,000 births. The syndrome affects both males and females and all ethnic and racial groups. PWS knows no economic boundaries and there is no cure. |